The Umbrella Project

Restoration of mobility in SCI rehabilitation:

Olga Kilkens, MsC (Researcher)
Lucas van der Woude, PhD (Program Supervision)
Marcel Post, PhD (Project leader)
Sonja de Groot, PhD (Co-ordination)
Annet Dallmeijer, PhD
Floris van Asbeck, MD, PhD
Anand Nene, MD, PhD
Edmond Angenot, MD

Restoration of mobility is a central focus of rehabilitation. Little systematic research has however been done. The theoretical importance of a longitudinal research approach is beyond doubt: knowledge today is solely based on empirical data and cross-sectional training studies in long-term SCI. Such a longitudinal approach will contribute to the theoretical understanding and modelling of restoration of mobility and its associations with impairments, disabilities and handicap.

Objectives

The hypothesis of the prospective cohort study is that restoration of mobility can only be successfully attained through specific training and improvement of the individual physical and physiological characteristics of the cardio-respiratory and musculo-skeletal systems.

Research Questions

How does restoration of mobility develop over time during the rehabilitation process at the level of impairment, disability and handicap?
How does physical work capacity evolve during rehabilitation?
Which changes take place in the cardio-respiratory and musculo-skeletal systems?
What are the central practice and training elements within the rehabilitation programme in terms of form, intensity, frequency and duration?
To what extent do these training elements relate to common theories on training and work capacity?
Are there any associations among the restoration of mobility and the characteristics of the rehabilitation programme, after correction for individual lesion and other subject-related characteristics?
To what extent can the restoration of mobility be explained by initial medical, functional-anatomical, mental and social characteristics of the person with SCI at the start of rehabilitation?
To what extent is the restoration of mobility instrumental to daily functioning and quality of life?

Schematic view of the outcome

inhoud1

You can read the first results of the Umbrella project by downloading the report (in Dutch).

List of publications

3rd international congress on restoration of (wheeled) mobility in SCI rehabilitation: state of the art III. Van der Woude L. JRRD 2004;41(2): Supplement 2.
Hand-rim wheelchair propulsion capacity during rehabilitation of persons with spinal cord injury. Dallmeijer AJ, Kilkens OJ, Post MW, de Groot S, Angenot EL, van Asbeck FW, Nene AV and Van Der Woude LH. J Rehabil Res Dev 42: 55-63, 2005.
Duration and functional outcome of spinal cord injury rehabilitation in the Netherlands. Post MW, Dallmeijer AJ, Angenot EL, van Asbeck FW and Van Der Woude LH. J Rehabil Res Dev 42: 75-85, 2005.
Course of gross mechanical efficiency in handrim wheelchair propulsion during rehabilitation of people with spinal cord injury: a prospective cohort study. De Groot S, Dallmeijer AJ, Kilkens OJ, van Asbeck FW, Nene AV, Angenot EL, Post MW and Van Der Woude LH. Arch Phys Med Rehabil 86: 1452-1460, 2005.
Standardization of measuring power output during wheelchair propulsion on a treadmill Pitfalls in a multi-center study. De Groot S, Zuidgeest M and Van Der Woude LH. Med Eng Phys 28: 604-612, 2006.
Demographics of the Dutch multicenter prospective cohort study 'Restoration of mobility in spinal cord injury rehabilitation'. De Groot S, Dallmeijer AJ, Post MW, van Asbeck FW, Nene AV, Angenot EL and Van Der Woude LH. Spinal Cord 2006.
Measurement properties of the short version of the Van Lieshout test for arm/hand function of persons with tetraplegia after spinal cord injury. Post MW, Van Lieshout G, Seelen HAM, Snoek GJ, IJzerman MJ, Pons C. Spinal Cord 44: 763–771, 2006.
Mechanical efficiency and wheelchair performance during and after SCI rehabilitation. De Groot S, Dallmeijer AJ, van Asbeck FWA, Post MWM, Bussmann JBJ and van der Woude LHV. Int J Sport Med 28(10): 880-6, 2007
Prospective analysis of lipid profiles in persons with a spinal cord injury during and 1 year after clinical rehabilitation. De Groot S, Dallmeijer AJ, Post MWM, Angenot ELD, van den Berg-Emons RJ and van der Woude LHV. Arch Phys Med Rehabil 89(3):531-77, 2008.
The longitudinal relationship between lipid profile and physical capacity in persons with a recent spinal cord injury. De Groot S, Dallmeijer AJ, Post MWM, Angenot ELD, and van der Woude LHV. Spinal Cord. 2007.
Return to work after spinal cord injury: is it related to wheelchair capacity at discharge from clinical rehabilitation? Van Velzen JM, De Groot S, Post MWM, Slootman JH, Van Bennekom CA, and van der Woude LHV. Am J Phys Med Rehabil 88(1):47-56, 2009.
Investigation of bias due to loss of participants in a Dutch multicenter prospective spinal cord injury cohort study. De Groot S, Haisma JA, Post MWM, Van Asbeck FWA, and Van der Woude LHV. J Rehab Med. 41(5):382-9, 2009.
Development and validation of prognostic models designed to predict wheelchair skills at discharge from spinal cord injury rehabilitation. De Groot S, Bevers GE, Dallmeijer AJ, Post MWM, Van Kuppevelt HJM, and Van der Woude LHV. Clinical Rehabilitation. 24(2):168-80, 2010.
Evaluation of the physical activity scale for individuals with physical disabilities in people with spinal cord injury. De Groot S, Van der Woude LH, Niezen A, Smit CA, Post MW. Spinal Cord. 48(7): 542-7, 2010.
Prospective analysis of body mass index during and up to 5 years after discharge from inpatient spinal cord injury rehabilitation. De Groot S, Post MW, Postma K, Sluis TA, van der Woude LH. J Rehabil Med 42(10): 922-8, 2010.
Occurrence and predictors of pressure ulcers during primary in-patient spinal cord injury rehabilitation. Verschueren JH, Post MW, de Groot S, van der Woude LH, van Asbeck FW, Rol M. Spinal Cord Jan;49(1):106-12, 2011.
Is manual wheelchair satisfaction related to active lifestyle and participation in people with a spinal cord injury? De Groot S, Post MWM, Bongers-Janssen HMH, Bloemen-Vrencken JH, van der Woude LHV. Spinal Cord Apr;49(4):560-5, 2011
Return to work five years after spinal cord injury inpatient rehabilitation: is it related to wheelchair capacity at discharge? Van Velzen JM, Van Leeuwen CM, De Groot S, Van der Woude LHV, Faber WX, Post MWM. J Rehabil Med 44(1): 73-9, 2012.
Adapted manual wheelchair circuit: test-retest reliability and discriminative validity in persons with spinal cord injury. Cowan RE, Nash MS, de Groot S, van der Woude LH. Arch Phys Med Rehabil. 2011 Aug;92(8):1270-80.
Longitudinal association between lifestyle and coronary heart disease risk factors among individual with spinal cord injury. de Groot S, Post MW, Snoek GJ, Schuitemaker M, van der Woude LH. Spinal Cord. 2013; 51(4): 314-8.
Arm hand skilled performance in persons with a cervical spinal cord injury: long-term follow-up. Franke AC, Snoek GJ, de Groot S, Nene AV, Spooren AI, Post MW. Spinal Cord. 2013; 51(2): 161-4.
Trajectories and predictors of the course of mental health after spinal cord injury. Van Leeuwen CM, Hoekstra T, van Koppenhagen CF, de Groot S, Post MW. Arch Phys Med Rehabil. 2012; 93(12): 2170-6.
Validity of the life satisfaction questions, the life satisfactrion questionnaire, and the satisfaction with life scale in persons with spinal cord injury. Post MW, van Leeuwen CM, van Koppenhagen CF, de Groot S. Arch Phys Med Rehabil. 2012; 93(10): 1823-7.
Employment trajectories after spinal cord injury: Results from a 5-year prospective cohort study. Ferdiana A, Post Mw, Hoekstra T, van der Woude LH, van der Klink JJ, Bültmann U. Arch Phys Med Rehabil. 2014.
Causes of death following spinal cord injury during inpatient rehabilitation and the first five years after discharge. A Dutch cohort study. Osterthun R, Post MW, van Asbeck FW, van Leeuwen CM, van Koppenhagen CF. Spinal Cord. 2014; 52(6):483-8.
Trajectories in the course of body mass index after spinal cord injury. De Groot S, Post MW, Hoekstra T, Valent LJ, Faber WX, van der Woude LH. Arch Phys Med Rehabil. 2014; 95(6): 1083-92.
Cardiovascular function after spinal cord injury: prevalence and progression of dysfunction during inpatient rehabilitation and 5 years following discharge. Ravensbergen HJ, de Groot S, Post MW, Slootman HJ, van der Woude LH, Claydon VE. Neurorehabil Neural Repair. 2014; 28(3): 219-29.